Celebrating Rare Disease Day With A Win!

Please work with and get advice from your medical team before making any decisions that could impact your health.

Before and after full body and face.png
The left side is before when I was bed ridden much of the time. . The right side is me today with 60% fewer Dercum’s tumors in my stomach and lymphatic backup has subsided. From size 32 to size 14 (XL)

Dercum’s Disease can force large amounts of weight on the body that mimics obesity. It’s rare and extrenely painful. Deemed almost impossible to treat.

The article that the first sentence here will lead you to, provides adequate information on this disorder. Along with lipedema, and lymphedema it’s been a “large” life for sure.

Changing my nutritional intake has done more for me than any information provided e by the medical experts I traveled so many hours to see. No way of knowing when I began eating Whole Food Plant Based, Low Glycemic Index, no oil, low fat, and low sodium that I would see any relief from these disorders. Just goes to show that each day there is a new chance for miracles.

Will always have Dercum’s Disease, lipedema and lymphedema, but this has helped. Based on the work of Dr. Michael Greger and his Daily Dozen, Dr Caldwell Esselstyn Jr, and Dr. Neal Barnard from Physicians For Responsible Medicine.  I was introduced to these men and their views by watching Forks Over Knives.

whole food plant based list

I highly recommend those who have any of those disorders and want more information to join us at Improving Fat Disorders Using Low Fat Low Glycemic WFPB Eating 

 

Celebrating 10 Months Of Low Fat, Whole Food Plant Based Healing

Inspite of having three fat disorders ( lipedemalymphedema and  Dercum’s disease ) that are progressive in how large they can make a person appear, and have zero to do with calorie intake or exercise…I have managed in the past 10 months to do this.

What is important to point out is that having had these disorders all my life, my hips and legs were always larger than the rest of me. One leg has always been larger than the other. My arms became heavy and large over the years. My stomach, arms, neck, back, hips and legs filled with Dercum’s Disease “tumors”. Lipedema and lymphedema causes swellings that would increase at the drop of a dime. I could put on 12 pounds from these lymphatic fluids in a day or two. I could start off the day at one level and end the day looking 20 pounds heavier just by moving around.

So look at these photos and see that now my hips are in proportion to the rest of my body, my arms have slimmed down, my face has deflated, my torso is smaller. My legs are within reasonable limits. One leg is stil slightly larger than the other, but not overly noticeable.  I went from a size 32 to a size 14.

Throw in the use of a box of Miss Clairol for my hair and bam! I look so different! Another thing that this style of whole food plant based, low fat, low glycemic eating has done for me is whip my diabetes, my blood pressure, my cholesterol in shape. That happened in the first month of switching for KETO to this style of eating. So I likely have added years to my life.

Cindy 10 month photo comparrison

Here are the foods that made it all happen.

Here is what I have followed that has worked.

3  one half cup servings of dark beans.

2-3 servings of fruit including one serving of berries. Fruit is fresh or frozen

3 servings of whole grain

a serving of cruciferous vegetables

2 servings of “other” low glycemic index vegetables

2 servings of dark greens

flax seeds or chia seeds

Limited avocado (1 total a week)

limited nuts ( 0 to 2 Tbl a day)

No animal products (no dairy, no meat, no fish, no chicken, no eggs, no dairy), no junk vegan food, no highly processed foods. No oils of any kind. no added sugar or artificial sweetners

I love the work of Dr. Caldwell Esselstyn Jr,  Dr. Neal Barnard from Physicians Committee For Responsible Medicine, and Dr. Michael Greger who runs Nutritionfacts.org and The Daily Dozen Phone app.

Best documentaries include: Forks Over Knives, Diet Fiction, Eating You Alive, and What The Health.

Best Facebook groups for those like myself who have lipedema, lymphedema or Dercum’s disease interested in doing this sort of eating? Those associated with what is listed above as well as Improving Fat Disorders Using Low Fat Low Glycemic WFPB Eating

In the group for Improving Fat Disorders Using Low Fat Low Glycemic WFPB Eating, no one associated with the group makes a dime off of any participant of the group and you are asked to work with your own doctor and make sure your own medical team is on board, get blood levels done on a regular basis, and other measures to assure you are taking responsibility for your own health decisions.

It’s not about being skinny, it’s about being healthy. If looking smaller ends up being part of it all, then great.

Here is a link to an article I wrote last year on how to approach changing your life with food.

This link is to an article to help you approach this way of eating

The Breakfast Trend You Need In Your Life, Whole Food Plant Style

20190130_081934~21008442341359159195..jpg
The Perfect Healthy Storm highlighted with fresh vegetables, fruit, healthy grains and accented with a tasty oil free dressing made of garbanzo beans-fresh orange-rice vinegar. Add a teaspoon of flax seed and drink a glass of high calcium, vitamin D plant based milk for good measure. Vitamin’s A, B, C, D, Minerals, protein, iron, calcium, protein, folic acid, fiber and more. Low Glycemic Index, Low Fat, Minimally processed. Whole Food Plant Based and oil free.

We keep a large  container of deep colored greens, cruciferous, root veggies plus other veggies and mushrooms in the fridge. I make a fresh salad to keep at my disposal every 2-3 days.  It’s just so easy to dish it out and eat it when busy.

So the trend of Breakfast Salads is right up my ally. The concept is to take the nutrition of the fiber and all those fresh vitamins and minerals and breakfast-fy them. Here is a way to add in some protein that may make whole food plant based protein sources more palatable in the morning. As the saying goes, the secret is in the sauce.

The Amazing Garbanzo Bean-Fresh Orange Salad Dressing

1 average size fresh orange, peeled and sections pulled apart.

1 cup of garbanzo beans (drained and rinsed if using canned)

1/4 cup plant based milk (unsweetened and minimal ingredients)

1 tsp of rice or apple cider vinegar

optional:

a dash or to taste of any of the following

garlic powder

dried crushed red pepper

lime juice

stevia

Directions:

Simply process in a high power blender until smooth. Store in airtight container. Can stay in fridge for a few days without issue. Shake before using.

Additional Notes:

For the dressing you can get creative and use other fruits as well or instead.

For the Breakfast Salad itself, for the cereal layer,  I use the recommendations of Dr. Esselstyn and stick with Ezekiel or Grape Nuts.  Whatever you use, read the package. Keep it minimally processed and as few ingredients as possible. No added sugar or oil.

For the salad shown, I used spinach, fresh cauliflower, snow peas, celery, carrots, mushrooms and fresh sliced strawberries.  Blue berries or sliced apples are great too with it. If you use apple, consider adding some cinnamon to the top.

It’s amazing how it doesn’t weigh a person down, and that fiber keeps you full all morning and with nice steady energy that can help keep you focus.

 

 

 

 

 

It’s Simple: Get Yourself Some Plants & Eat Them

 

 

20190111_111447~23204169038726674291..jpg
Grilled Mushroom Steak marinated oil free, on top of brown rice and peas with curry seasoning. baby spinach and baby kale on the side with lemon juice.

Whole Food Plant Based (WFPB) eating isn’t nearly as difficult as some fear it to be. It’s simple, you get plants and you eat them. You try not to process them more than you have to  you eat as much of the whole plant as possible and no oil or sugar and keep it low glycemic index and low sodium.  In other words, just eat plants or a combination there of.

It’s all mental. I now routinely pop into my mouth greens with nothing on them at all.   A little lemon or lime or squeeze half of an orange onto greens, sure.  That’s a far cry from my youth.

I’m part of the original Golden Arches generation back in the tiny town in Ohio where I grew up. We were the first batch of youth in that town to have a McDonalds at their disposal. Getting food from McDonalds was a treat in those days.  It was reserved for an occasional Friday night or after church on Sunday, or to celebrate something special. I remember fantasizing before I discovered boys,  about being living at the McDonalds and being allowed to eat all the cheeseburgers I wanted.

Even mentally back then, food was a reward and part of the celebration and all of it was about meat and dairy and eggs. (it’s so stupid, but I remember the first time I had an egg McMuffin).

So you mentally have to give up that notion of the very food that has made you sick being worth it to you to eat. It’s all an addiction and you need to get refocused on living instead of contributing to an early death.  You are hearing it from the horses mouth here. LDL dropped 57% in the first month while cutting my blood sugars in half, and no more blood pressure issues. Boy oh boy did I lose weight! After a few weeks people thought I had weight reduction /bariatric surgery.

img_20180702_231620334_hdr~21520585298..jpg
Left April 2018. Right June 2018
20181127_123401~4.jpg
Me November 2018

All I am saying is Give Plants A Chance!

My suggestions and resources I used

I did it cold turkey. Others have to ease into it in their own way. In the end you just have to say, screw it and know that the anxiety you feel about eating plants is based on bad information. Face your fears and stop putting  the animal products for a week and give it a try. Just eat the plants!

You acquire the plants and you eat them. What can be easier?

Black beans and salsa, whole grain tortillas, sweet potatoes, peas, lentils, greens of all varieties, squash, and on and on and on. Fresh, frozen, even sometimes canned if low sodium, it’s fine. You can combine those things as you wish, but try to keep the whole edible plant in what you eat.  Let your body digest the whole plant. It helps to stabilize the blood sugars which impacts the condition of our endothelium cells on the walls of our blood vessels throughout our body.

 

 

Avoid using oil, salt, sugar, artificial sweeteners, and overly processed foods like white rice and white flour. Keep it to actual plants and low sodium herbs and seasonings.

To this day, I stagnate in my progress if I give in on the oil and sugar or I eat processed foods including processed vegan foods. It’s just not worth undoing the good that I’ve done over the last nine months.

And to my friends with chronic health conditions and those who care about them:

Try to remember that this is a wonderful tool and it’s possible to see some reversal of symptoms but not a guarantee of a cure. Even if you lose weight, losing weight isn’t the end all with some chronic conditions. It looks more attractive and it feels good to look good. BUT that doesn’t mean that the person is magically cured of all chronic issues. But I know in my case it sure has likely helped to add to the length and quality of my life.

Work with your medical team, remember animal products is a head game and not really necessary to survive and oh yea one more thing…

Just Eat Those Plants!

 

 

 

 

Eating Healthy When Chronically Ill

The problem with having chronic illness and trying to eat healthy is that the chronic illness can  keep you from being well enough to put together healthy food.  I’m lucky I have a husband and some very helpful convenience appliances that make it more doable. Still there are times I need to do this on my own. Almost always I can barely make it across the room.

Best suggestions I can give is to always keep a covered container of greens and chopped veggies  and fresh fruit in the fridge so all you have to do is dish up.

 

 

Have canned beans that you can drain and use.

Whole grain bread (egg free is best) to make veggie open face sandwiches is good.

Batch cook on your good days. Even if you have one or two reasonable days a month, it can make a huge difference.

Here are other possibilities to have on hand with the right planning.

 

 

Here is a recipe that literally just happened today.  I managed to toss together on a so-so day that is my norm. Couldn’t stand over a stove. Number of variations possible are limited only by your imagination. Took less than 5 minutes to toss together and then it got tossed in the oven where it baked while I sat on the sofa with my legs up and felt miserable (aka typical day).

Whole Food Plant Based Pointer: Using Parchment Paper means you can keep

 

Cindy’s Plant Based Mexican Bake Casserole

Serves 4-6

2 cups garbanzo bean flour ( Bobs Red Mill found with that line of products).

I tsp baking soda

2/3 cup salsa
2/3 cup water

1 cup of favorite Mexican friendly veggies (riced or finely chopped or chunked onions, peppers, tomato, cilantro, cauliflower,  greens…corn and black beans)

Mexican seasoning of your choice…
Chili powder, cumin, turmeric, low sodium chili or taco seasoning. Curry seasoning is good too.

Possible toppings for after baked…

Shredded lettuce, Miyoko cheese, addition chopped veggies and or salsa….

Directions.

Combine ingredients except toppings. Pour into lasagna pan that has been lined with parchment paper. Bake at 375 until cake like (approx. 20 minutes).

Serve in squares and top as desired.

Mine looks boring compared to how colorful you could make it look. It’s just what I had on hand.

20190109_114400~23640483816662530280..jpg20190109_1139478831248832868340471.jpg

 

It tastes amazing!

 

 

 

 

 

 

A Meat, Eggs and Dairy Lover’s Guide To No More Animal Products

 

How lucky for me that I puked my guts out. When I ended up in the hospital, deathly ill after over two days consuming a fish sandwich and I turkey sandwich Easter weekend 2018, I never thought of myself as lucky. Really though it gave me a good opportunity to walk away from meat, dairy and eggs and never look back.

Top row of picture were taken that weekend when I got so sick from meat. Bottom row taken several months later, still animal product free.

 

 

Had it not been for the taste and smell of those products repulsing me, I would have had a harder time giving it all up.  I’ve watched my husband long for an Arby’s Roast Beef and pepperoni pizza dripping with thick slabs of  cheese. He had a harder time, but he managed.  I could see it was a thought process for him.

So much about our lives have been wrapped up around animal products.

What holiday or family event doesn’t have animal products as the centerpiece of the associated feast? I can’t think of any.  Traditions, holidays, early childhood memories, all of that is very powerful.

 

 

So it’s a week before Christmas and you are trying to gain control of your health. With the guidance of your own doctor of course,  you have chosen to eat whole food plant based which means all  animal products, sugar and overly processed foods are banned.

Some people can go cold turkey in avoiding turkey and gravy over the holidays. They can even drive past a fast food drive thru and never get a burger, fish or chicken or even a taco with cheese. If they eat animal products it’s only because they didn’t know it was in the food they were served to eat (and yes that is going to happen  especially at family gatherings).

Then there are people who genuinely feel giving up animal products is like pushing away the love of their lives or an dear friend. It’s anxiety provoking.  The fear of living without animal products means for them that they break up with animal products in steps.  I call this the process of Burger and Human Uncoupling.

Would Shakespeare have written verses about the despair and feeling pulled between lusting for cheese burgers and possibly deflating backed up lymphatics and staying alive an extra 10-30 years? 

 

Ode To Animal Products: My Mind’s Tears I Weep For Thee

(spoken tenderly with great drama)

Verse I

“Oh Cheese Burger, Pepperoni, Chicken and Eggs…

In my mouth you delight, but  inflate my legs.”

Verse II

” So Cheese is dairy, so is yogurt and Butter.

I loved you before, but now must love another.”

Verse III

“Endothelium,  walls of arteries and veins you line.

So no animal products I eat or carbs refined. “

 

It’s only slightly an overstatement to say that for many  to give up that relationship with animal products is very imposing..

So let’s be reasonable. So much of this is mental. You have to have courage to turn away from all meat, dairy and eggs as well as processed foods. While it is for health sake better to just cut off all animal products, it may not be in the long run productive. You may be one of the people who may give up for good the first time you cave.  So if you must,  take steps to prepare yourself to gain that needed confidence that you can live without animal products.  Start introducing what others call “transition foods”. These are foods that can give you a sense of having some of the textures and tastes you are in the habit of eating, without them actually being animal products.

Vegan food has come a long way. Please note that I use the term Vegan food instead of Whole Food Plant Based. Processed vegan foods many times are not that healthy. I would never suggest eating processed vegan foods on a regular basis over time but there is no crime in using them initially on occasion. Will they make you blow up like a balloon if you have soy and or sodium sensitivities? Maybe.  before going 100% without meat dairy and eggs or not, you’ll have to decide if it’s worth it not to eat soy filled and high sodium foods. Read the labels and weigh it all out.

Another way to approach it all is if  you cease eating one product at a time and adjusting to that before removing the next product that is ok too. And like I’ve pointed out throughout this piece, eating processed vegan food at times in the start, is fine too as long as you keep your eyes open to it temporarily making symptoms for things like lipedema, lymphedema and other disorders worse.

And even once you make the clean break from animal products, don’t be stunned if you still feel the need for a burger sometimes or cheese. It’s ok to ocassionally indulge in a Beyond Meat Burger (sold in many stores and some restaurants) or Impossible Burger (served at White Castle, and some restaurants  and coming to stores in 2019). There are also several other brands of non animal product burgers you can indulge in.

Just make sure that the majority of the time, you are eating actual fresh vegetables, fresh fruit, fresh greens,  unprocessed grains,  fresh or dried beans, peas, lentils, and a few unsalted nuts here and there. Some flax or chia seed for good measure, and take a good B-12 suppliment.  Have some blood work done to see if you are lacking in anything else.

img_20180706_174245657~2388946737..jpg
Black Bean Chick Pea Salsa Burger w/ lemon spinach and Orange Sections

I am just going to drive this point home one last time… better to eat whole foods that are plant based, without added oils, sugar or processed ingredients. Try for example, bean burgers or use lentils in place of ground beef in sloppy joes. They are better for you than the mass produced, pre-prepared vegan burgers and so on. Let me tell you, it can be pretty tasty.

img_20180727_122405492~31731469823..jpg

Need a chance to wrap your brain around the notion of no animal products? Here are some suggestions.

Miyokos Cashew Based Cheeses

Beyond Meat Burgers, Sausage, Chicken and Crumbles

Impossible Burgers

Just Eggs

 

 

 

 

 

 

Couldn’t Reduce Size Until Lymphatic Disorders Were Treated Through Food.

It’s really important that you know you are a worthy human being no matter your size, genetics, or how even family members might treat you. I have spent several years in the online company of many wonderful people who like myself have had lymphatic challenges and will likely never be the vision of thinness (and in our society thinness is associated with health). I see every day in the comments from these dear people what they put up with from strangers, family members and even doctors.

Make sure that you do it for you and do not expect untrained medical professions, family and friends to respond as you would like. People are odd even the ones people love.. Don’t do it for THEIR approval. Do it because you know you matter and are worth having around even if they don’t get it. I see it too many times where someone feels their value is based on their appearance. You can’t keep the rest of the world from being like that, but you can control YOU from thinking that way.

I have suffered from lipedema and lymphedema from the time of being a child. A doctor working with my mom at a hospital saw a photo of my twin sister and I and stated that given the fact that my sister and I were so different in size, we would have made a great study in metabolism.

Of course what the doctor didn’t understand was that in reality was that I had more issues with the veins in my body allowing lymphatic fluids to not evacuate my body properly and so parts of me were swelling up.

I always had one leg that was larger than the other, and I was from infancy larger than my sister.

Always known as the “fat one”, I just hated it. There is always a tendency to compare twins so that made the comments more frequent and with no regard that I was standing right there. It was one heck of a way to grow up. Back then no one knew anything about lipedema or lymphedema. I was accused of not trying to control my weight by multiple doctors over the year.

Whole Food Plant Based eating that is focused on low fat, low glycemic index foods with no added oils or sugar has benefited everything. I look better now than I did when I was 29!.

How many women can say that?

I Look Better Now Than I Did At Age 29

The photos in the center are from when I was 29. The larger photos on tbe two ends are from the past week. I am now 56.

Inner photos are 1992. Ouside photos from now.

I Improved My Health And Appearance.

Below the center photo is me almost a year ago. Outside photos from now.